four little blondies: Happy Friday!

Update.....we met with the wheelchair people on Tuesday and are speechless after learning Lauren's wheel chair is going to cost $7500-8000, since our insurance will only pay for $2500 of that we are holding off ordering until we come up with the rest of the money. We are applying for Medi-CAL, there is a program called "Institutional Deeming" this means that we had to have Lauren declared "institutional needy" and this program should help us pay for equipment and therapy. The program is designed to help families like us to keep Lauren at home but not to drain our income and since she is not eligible for SSI until she is 18. So we are keeping our fingers crossed that we are approved.

I took Lauren to the GI doctor on Thursday and we have decided that an Upper GI is needed, so we will be heading to Miller Children's Hospital in Long Beach to have this test done. I am worried because some how we have to get her to eat/drink barium and then have x-rays of her tummy and considering she is not allowed to eat 4 hours b4 the test which means she can't eat anything after 6am but she doesn't even wake up until 7:30. So she will be exhausted or starving and I can't decide which will be a worse thing for the test, since she won't eat what she likes when she is tired or over hungry. We shall see.......

Found out yestereday that our transition meeting for the girls will be Feb 23, we will be meeting with the school district, all their therapists and our regional center counselor to see what needs to be done to make the proper placements in school for them in April when they turn 3. I am nervous about this since it will be a lot of change for us and them. They will be attending school 5 days a week instead of 3 that they are now, and the hours are from 8:30-1:30, now they are 9:30-12:30. But as with every change we go thru, we all adjust as needed, but I HATE CHANGE! We will be losing all home based therapy as this will become the responsiblity of the school district, which worries me also because of all the budget cuts, you can't get blood from a rock, but we will fight for what they need. We are very thankful that we have OT and PT thru California Children's Services until they are 21, so we are just concerned about speech mainly for Alison since she is not talking, alot of babbling... Aaron taught her to say OB AMA this weekend and she says it with such gusto! We will have to figure out how to post video.

Taylor is enjoying school, tap dancing and swimming and as always she is big help to me and loves playing with Alison and talking to Lauren. Whenever Lauren hears her voice she smiles and gives a happy sigh.

Lauren loves her chocolate pudding, of course she can't have it very often because chocolate is so bad for reflux.